RESOURCES
Ask for help not because you're weak, but because you want to remain strong!
Les Brown
Parent Manual
A guide created by parents & NICS to provide super helpful information for families of children with
CS &/or TTD.
NICS-Parent Manual.org (pdf)
DownloadHealthcare provider manual
A guide created in conjunction with medical professionals and parents to inform healthcare providers and emergency personnel regarding the unique needs of children with CS &/or TTD.
NICS-Healthcare providers Manual.org (pdf)
DownloadGrowth Charts for CS Children
We all know our children don't follow the growth curves for typical children. These are designed specifically to track growth for CS children!
Growth charts for CS (pdf)
Downloadmedical history templates
Fill in your child's medical history in to this form to print out and take with you to physician visits or emergency department visits. Easy to update and very important to provide this information to physicians caring for your child.
Amy and Friends
Who are Amy and Friends?
Amy & Friends was formed to support children and families suffering from CS and TTD. They provide tons of resources and information!
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