Welcome!
Connecting families of loved ones with Cockayne Syndrome &/or TTD
You are not alone!
Who We Are
ABOUT US
We are parents of CS kids here to support and to share information and advice. This site will be for anyone who has a child with CS or TTD. There are so many of us in this great big family and we have so much to learn from each other and be huge supports to each other! Even when our babies leave us, their lessons do not and we can all help one another!
You are not alone, we are one big family!
National Initiative for Cockayne Syndrome
NICS is an organization started by a CS mom dedicated to the improvement of the quality of life for children and families affected by Cockayne Syndrome through medical education, early diagnosis and research.
For more articles, helpful resources and links please clink on our RESOURCES page.
What is Cockayne Syndrome?
What is TTD?
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